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Resilience: The New Afterword QUOTES

11 " I felt alone. There is part of this disease that belongs only to me. I never felt comfortable sharing the moments when logic left and the pain of the treatment magnified the risk of dying, when fear did come in. What could the people who love me do, anyway, I figured. It would only make them feel lousy that they could not honestly say anything that would change the reality I was facing. This is the catch-22: We protect them when they want and need to protect us, when they know we want and need protection. With each side protecting the other, neither of us gets what we want or need. But I always figured it was impossible to get what we needed. I had the disease, they could not change that. All I could do was guess what their reaction would be to my expression of my fears—impotence, I guessed—and what was the point of that? I kept from them my greatest fears precisely because they would respond with protestations that this was about tending to me, not about tending to them. And they, though they might keep a stiff upper lip with me, would, I discovered later, fall apart alone in fear and grief. They could not ask me to carry them through this. In our way of being gentle with each other, we never really see it from each other’s perspective. I had to decide what I should share. My conclusion? I have shared very little. Maybe not talking about the fear was better anyway, not allowing it to own any more of me than it already did. And if it is not better, well, fortunately, we have more days to get it right. "

, Resilience: The New Afterword