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1 " McKusick's belief in this paradigm-the focus on disability rather than abnormalcy-was actualized in the treatment of patients in his clinic. Patients with dwarfism, for instance, were treated by an interdisciplinary team of genetic counselors, neurologists, orthopedic surgeons, nurses, and psychiatrists trained to focus on specific disabilities of persons with short stature. Surgical interventions were reserved to correct specific deformities as they arose. The goal was not to restore " normalcy" -but vitality, joy, and function. McKusic had rediscovered the founding principles of modern genetics in the realm of human pathology. In humans as in wild flies, genetic variations abounded. Here too genetic variants, environments, and gene-environment interactions ultimately collaborated to cause phenotypes-except in this case, the " phenotype" in question was disease. Here too some genes had partial penetrance and widely variable expressivity. One gene could cause many diseases, and one disease could be caused by many genes. And here too " fitness" could not be judged in absolutes. Rather the lack of fitness-illness [italicized, sic] in colloquial terms- was defined by the relative mismatch between an organism and environment. "
2 " Trans” may work well enough as shorthand, but the quickly developing mainstream narrative it evokes (“born in the wrong body,” necessitating an orthopedic pilgrimage between two fixed destinations) is useless for some—but partially, or even profoundly, useful for others? That for some, “transitioning” may mean leaving one gender entirely behind, while for others—like Harry, who is happy to identify as a butch on T—it doesn’t? I’m not on my way anywhere, Harry sometimes tells inquirers. How to explain, in a culture frantic for resolution, that sometimes the shit stays messy? I do not want the female gender that has been assigned to me at birth. Neither do I want the male gender that transsexual medicine can furnish and that the state will award me if I behave in the right way. I don’t want any of it. How to explain that for some, or for some at some times, this irresolution is OK—desirable, even (e.g., “gender hackers”)—whereas for others, or for others at some times, it stays a source of conflict or grief? How does one get across the fact that the best way to find out how people feel about their gender or their sexuality—or anything else, really—is to listen to what they tell you, and to try to treat them accordingly, without shellacking over their version of reality with yours? "
― Maggie Nelson , The Argonauts
3 " After consciously enduring a twelve-inch knitting needle navigated into the unseen recesses of my pelvis and almost passing out at the sensation of my hip inflating with fluid and somehow clinging to my sanity through the hour-long, migraine-inducing blare of the imaging contraption, which resembled a compact wind tunnel, possessed the amplification capability of a Marshall stack, and pushed my patience beyond the limits of superhuman endurance, I wasinformed by my orthopedist that the image of my still-smoldering hip had revealed, and I quote, “just a little inflammation.” In the world of orthopedic medicine, “a little inflammation” apparently qualifies as sound diagnosis. "
― Daniel Stern , Swingland: Between the Sheets of the Secretive, Sometimes Messy, but Always Adventurous Swinging Lifestyle
4 " By listening to the “unspoken voice” of my body and allowing it to do what it needed to do; by not stopping the shaking, by “tracking” my inner sensations, while also allowing the completion of the defensive and orienting responses; and by feeling the “survival emotions” of rage and terrorwithout becoming overwhelmed, I came through mercifully unscathed, both physically and emotionally. I was not only thankful; I was humbled and grateful to find that I could use my method for my own salvation.While some people are able to recover from such trauma on their own, many individuals do not. Tens of thousands of soldiers are experiencing the extreme stress and horror of war. Then too, there are the devastating occurrences of rape, sexual abuse and assault. Many of us, however, have been overwhelmed by much more “ordinary” events suchas surgeries or invasive medical procedures. Orthopedic patients in arecent study, for example, showed a 52% occurrence of being diagnosed with full-on PTSD following surgery.Other traumas include falls, serious illnesses, abandonment, receivingshocking or tragic news, witnessing violence and getting into anauto accident; all can lead to PTSD. These and many other fairly commonexperiences are all potentially traumatizing. The inability to reboundfrom such events, or to be helped adequately to recover by professionals,can subject us to PTSD—along with a myriad of physical and emotionalsymptoms. "
5 " Swimming is probably the ultimate of burnout sports. It's ironic because millions of people who swim as their regular exercise love the meditation aspect of it you don't wind up with any orthopedic injuries. But when you swim at a world class level for hours and hours - the loneness of the long distance runner. "
6 " I have an orthopedic pillow that's made out of a sponge material. I have a plate in my throat, and I have to be careful or I could end up with a bad neck in the morning. That pillow is a must everywhere I go. "
